If you are a medical doctor involved in the treatment of colorectal cancer in adults aged 70+, all over the world, you are invited to take part in this anonymous online survey. The purpose of this digital document is to provide you with some information on the study to help you decide whether you would like to take part.
Given this study only involves a one-time anonymous participation, the ethical commitee (National Research Ethics Committee of Luxembourg) confirmed this project was exempt from full ethical review. However, this exemption should not be considered as an incentive for participation; participating in the survey remains entirely voluntary.
WHAT IS THE PURPOSE OF THE STUDY?
The purpose of this study is to identify medical doctors' information needs regarding the treatment strategies of colorectal cancer in adults aged 70+.
HOW WILL THE STUDY BE CONDUCTED?
If you choose to take part in the study, we will only collect the following data from you, by means of a 12-items questionnaire:
- Your profile and practice setting: professional role, country, number of years of experience, type of hospital, and number of beds
- Your experience in treating adults aged 70 and over with colorectal cancer
- Your needs for information regarding the effectiveness of colorectal cancer treatment strategies in adults aged 70+.
Your data will be collected using an online questionnaire.
It will take approximately 5-8 minutes to complete this questionnaire. As the survey is anonymous, no information allowing your identification will be collected.
WHAT WILL HAPPEN TO MY DATA?
Your data will be used to identify research gaps and guide the formulation of research questions for future studies on colorectal cancer treatment in adults aged 70+ using observational data.
Here is how your data will be handled:
All collected data will be stored on a secure server at the Luxembourg Institute of Health (LIH), on a password-protected laptop.
The data will be used for:
- Identifying research gaps and guiding the formulation of research questions for future studies on colorectal cancer treatment in older adults using observational data.
- Writing up research articles.
- Preparing communication material for stakeholders and the public.
- Presenting at scientific events.
Please be informed that the data collected for the purpose of this study will be solely used for research purposes and will not be used for any commercial or business purpose with a profit-driven aim.
WHAT ARE THE BENEFITS OF TAKING PART IN THE STUDY?
Your participation is voluntary. You will not benefit directly from taking part in this study. You will not receive financial compensation for your time spent participating. However, your participation is important to improve the treatment of adults aged 70+ with colorectal cancer.
CONFIDENTIALITY AND DATA PRIVACY
The data processed for this study is anonymized and therefore falls outside the scope of the General Data Protection Regulation (EU) 2016/679 of 27 April 2016 (GDPR). Nevertheless, LIH implements appropriate security measures to protect the collected data against risks such as unauthorized access, loss, fraudulent use, disclosure, modification, and destruction. All data will be treated with strict confidentiality.
Retention period
LIH will retain the data for at least 10 years after the publication of the last scientific article based on the data collected and generated from the study, in order to allow for verification, reproduction, or further exploration of the findings, thereby contributing to scientific progress.
YOUR DECISION TO TAKE PART
You have the choice not to complete the survey. Once your answers are submitted, we will not be able to delete them, as the data will be anonymized and therefore cannot be linked back to you.
HELP US REACH TO MORE COLLEAGUES
Please share this link with your colleagues involved in the treatment of patients aged 70+ with colorectal cancer.
INFORMED CONSENT FORM
- I declare that I have read and understood the information provided above.
- I have had enough time to consider my involvement in the study.
- I am aware of what is expected of me as a participant in this study.
- I am aware that my participation in this study is entirely voluntary and once my answers are submitted, the research team will not be able to delete them, as the data will be anonymized and therefore cannot be linked back to me.
- I am aware that there will be no secondary use of my data.
- I accept that the results from this study may be disclosed and reported in scientific publications. The way in which these results are presented will in no way enable me to be identified, either directly or indirectly.
By clicking the following button, you confirm that you have read and understood the information above:
